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Home » What's New » Sjogren’s Awareness – Understanding The Invisible Disease 

Sjogren’s Awareness – Understanding The Invisible Disease 

In an effort to spread the word to increase awareness about Sjogren’s Disease, eye care providers are speaking out about this hard-to-diagnose condition.

Sjogren’s is a systemic autoimmune disorder that can affect the whole body. One of the primary symptoms is excessive dryness particularly in the eyes and mouth. Other serious symptoms include chronic fatigue and pain, specifically in the joints, as well as major organ dysfunction. The syndrome also increases chances of neuropathies and lymphomas. 

The severity of the disease varies greatly, ranging from mild discomfort to debilitating symptoms that can seriously impair normal functioning in everyday life. Early diagnosis and treatment can prevent serious complications and improve quality of life. There is currently no cure for Sjogren’s, yet there are treatments for many of the individual symptoms. On average patients are prescribed upwards of 8 medications to treat the wide range of symptoms. 

Women are nine times more likely to develop Sjogren’s than men and diagnosis usually occurs around the age of 40. Unfortunately, because the symptoms vary from person to person, and the disease often occurs in the presence of or mimics other diseases (such as lupus, rheumatoid arthritis, menopause, allergies or multiple sclerosis) the disease is often misdiagnosed or overlooked. Further, because the symptoms can affect different parts of the body system such as the teeth, eyes or musculoskeletal system, various health professionals are sought to diagnose or treat specific symptoms (such as rheumatologists, dentists or eye doctors) while the big picture is often missed. On average it takes almost three years to obtain a Sjogren’s diagnosis once symptoms are noticed.  

Since dry eye is one of the most common early symptoms of the disease, there has been an effort to educate eye care providers to recognize and to be aware to look for symptoms of the disease. Patients also need to be aware and proactive about speaking to their health care providers about potential diagnosis and treatment. Knowing the risk factors and symptoms can be imperative to a faster diagnosis. 

Your eye doctor may be able to detect and diagnose Sjogren's syndrome from dry eye symptoms as well as other diagnostic tests and review of symptoms. With this diagnosis the treatment will be different from typical dry eye disease. Since it is an autoimmune disease, lubricating eye drops may provide temporary relief but will not address the source of the problem. Your doctor may prescribe newer cyclosporine drops as well to treat the inflammatory response. If you have dry eyes and typical treatments aren’t working, it may be worthwhile to ask about Sjogren’s. 

Sjogren’s patients often feel misunderstood because most of the debilitating symptoms are not visible to others and the disease is often not recognized largely due to a lack of awareness. By increasing both public and professional awareness, the goal is to reduce diagnosis time and to advance research on the cure for this disorder.

We hope this finds you all healthy and safe.  We are pleased to announce our re-opening for routine eyecare on Monday May 11, 2020.

As a valued member of our Lake Erie Family Eyecare patient community, we appreciate the trust you place in us and want to inform you about how we are addressing the coronavirus (COVID-19) situation.

Please know that our office is following all recommended guidance from public health authorities, including best practices for hygiene, infection control and medical professional team health. We feel confident in our ability to continue seeing patients and providing primary care according to the tradition of quality care that you have come to expect and deserve.

Our highest priority is to keep all of our patients and staff as safe as possible.

The coronavirus spreads very easily. So, please call us before you come in for an appointment if you have any of these symptoms or risk factors:

 

As a staff we will be wearing masks and request that you do as well for everyone’s safety and to limit the possibility of exposure.  If you do not have a mask, we may be able to provide you with one while our supply lasts.

Please try to complete all necessary paperwork prior to your scheduled apt (can be found on our website..)

We are requesting that only scheduled patients enter the office ( including glasses selection and dispensing/adjustments to help practice social distancing and to keep foot traffic limited as much as possible (if the patient is a minor or requires the assistance of a caregiver, please limit this to one additional person if possible)

For contact lens orders, please call ahead for curbside pickup

We are excited to resume patient care and will continue to closely monitor events in our local community in order to continuously update our policies and protocols as a result of new information.

Thank you for your understanding and please know that we appreciate your trust. We hope you and your family are well and continue to stay healthy & safe during this time.

With kind regards,

Dr. Jennifer Felbinger and the Lake Erie Family Eyecare team.